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See you soon in St Louis at TRIO/ITNS symposium. Hope you are doing well
Hope you made it back safely. I had a great time in Pitt ... it was very nice meeting you!!
Take care,
Tish :0)
Just FYI, to reply to a comment someone leaves on your page, you must hit "comment back" and leave comment there. Otherwise they don't know you're replying to them. The message you wrote to Jim below, did not prompt him to come read it. You should copy it, hit "comment back" below his message to you, then paste it in the comment box you'll see when you do this.
Take care,
Nelson
Time makes it 60 years since I developed HCM, Dr. then said he didn't know what it was and didn't think there was a doctor in the world that did. Next year will be 50 years since my familys first appointment to NIH, just across the river where we lived. It took NIH three tries (my brother, sister then me) three months of testing to determine the old Dr. was correct.Then after being a patient at NIH for 30 years I received my heart transplant. Now in the process of having DNA testing done to find out which genes are mutated to cause the disease. Have learned many more people have it that I had ever thought.It is the disease that lots of athletics go into ventricle fibrilllation and die on the spot.
I sure wish this site had spell check. I need it. If you google IHSS or HCM there is lots of information there. NIH has always said I am the index patient in the world diagonsed with the disease, That and 59 cents will get me a cup of senior coffee at McDonalds.
I will be in booth 201 at the games, also will be going Monday night on the Quarter Century Club boat ride. Do you have information on the Quarter Century Club?
Claude Brady
Nelson