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- What is your city / state and country of residence?
- Archbold, OH USA
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Double Lung
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- I am grateful to my donor family for the gift of life to have the opportunity to raise my son. He was only 2 when I received my gift of life. I am grateful to God for the blessings he has given me many times over.
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- If you are a recipient, when did you have your transplant(s)?
- May 25, 2004
- What is your principal transplant med(s)?
- Prograf, Cellcept, Prednisone
- What is your hospital and, or doctor's name, city / state and country?
- Cleveland Clinic
Dr. Gosta Petterson
- If you are on the transplant waiting list, please use this space to write about your experience:
- I have been given this amazing opportunity to grow with my son. We swim, bike, walk, play and before transplant, I could barely make it to the bathroom without oxygen. I am doing things I didn't think I would be doing. My son and I used to lay in bed while he watched cartoons until I had the strength to get up. And though he was only 2, he knew somethng wasn't right and never left my side. Now, he says, " mom, let's go!". He knows. He used to ask, " let me see you scar".
- What do you do for a living?
- I graduated from Ohio State and am a Registered Dietitian. I am the Clinical Nutrition Manager at our local hospital and Renal Dieitian at our dialysis center. I am a mom and wife, which are both hard work, but well worth it.
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- My experience with transplantation was short-lived. I was only on the waiting list for 5 months and 1 week. Total shock when I received the call. I was making scrambled eggs for my son at 10 in the morning. I told them I needed to shower first and then was on my way. All went smoothly and I was on my way to recovery. I spend alot of time running youth programs for our church along with my husband. We volunteer our time for many different organizations: Life Connection of Ohio, Cystic Fibrosis Foundation, Church. Anywhere we can raise organ donation awareness, we are there.
- How did you find out about TransplantCafe.com?
- friend
- What is your relationship status?
- Married
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Comment Wall (14 comments)
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I am a seven year survivor of a single lung transplant. I was on the list for a double but if you read my story you will see why I only got the one.
I read your list of meds and just wanted to tell you to watch your side effects of CellCept very closely. Also your Prograf. Both became a BIG problem. The Cellcept with my overall health. Colon very irritated and the Prograf started changes in my kidneys. I am now on Rapamune and Azathioprine instead. Not that those drugs will cause the same problems for you, I sincerely hope not. I do know I feel better than I did.
I hope your recovery is going well. Each day at a time, and God's grace will get you through. xoxoxo ♥ CINDY
I would just like tp say thank you for becoming my friend
How have things been since your Transplant hope all is going well take care from Nicola
Just E-mail me the pictures, post them to a website or send them to me on a disc in the mail and I will be sure to include as many in the Team Ohio video as possible. I won't begin production for another 2 weeks due to work commitments and the fact that I will get better editing software after visiting UD. My brother's video is not one that I created, but I have imitated it with a slideshow for a good friend...
http://www.youtube.com/user/LoveMeSomePete
Vickie "Guppie"
Kidney
I know quite a few people who got their transplants at Cleveland Clinic. My daughter is now 16. She was 4 when I was transplanted.
It has abeen a great ride!
Just wanted to say hello and noticed that you and I are on the same meds....
Troy
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