Team Prograf

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30 Comments

Comment by Daphne Veys 16 hours ago

Started taking Prograf in 1998 after Transplant #1 and was having a HORRIBLE time with Cyclosporine.

Transplant # 2 = Rapamune
Transplant # 3 = Prograf

Hair thinned out everywhere. Didn't mind not having to shave my legs, but missed the hair on my head. Went from having long, thick, curly hair to thin, baby fine like hair.

Always wearing some kind of hat , usually baseball because I don't like the overly "girly" hats when I go out, even in winter. Don't like the very thin, scalp showing hair I have on top of my head.

But things could be much worse. Could still be on dialysis or not even here.

Comment by Troy K. Childers 22 hours ago

Just wanted to say hello to all my Prograf Buddies.....

Troy

Comment by Robyn on July 22, 2008 at 5:48am

My highest was a 9 - at the time I was on 3 mg am & 3 mg pm - now I am on 3 mg am & 2 mg pm & I am down to a 6, which I believe is good
I know that levels can come back higher if you don't take it within the proper time period. Let us know what happens & good luck! :o)

Comment by Donette on July 21, 2008 at 4:15pm

Hi Everyone! I donated a kidney to my husband, Greg. He is doing pretty good so far. The transplant was May 13, 2008. He is on Prograf 2mg AM and 2mg PM. His level came back today...it was 14. We are waiting for the Dr. office to call back to see what next step is. Just wondering if anyone out there had the level come back that high.
Have a good evening.

Comment by Daphne Veys on July 20, 2008 at 12:58pm

Had 3rd transplant Thanksgiving weekend 2007. Take 1mg in AM & 1.5mg in PM.

Comment by Andy Claytor on July 20, 2008 at 6:38am

I take 1mg once a day for 13 1/2 years now...such a nice surprise to see everyone here

Comment by Jennifer Yokley on July 12, 2008 at 6:06pm

Hi, I just had my second kidney transplant on 6/24/2008 and am taking prograf 5g twice a day.

Comment by Troy K. Childers on July 8, 2008 at 11:37am

Hello everyone....
I am 4 years 5 months pancreas TX...I take 2mg in the a.m. and 1 in the p.m.

Comment by Maggie Catherwood on July 8, 2008 at 6:36am

Hi everyone! I take 3 mg in the morning and 2 mg in the evening....i'm about a year and 4 months out of tx, and my dosage has decreased a lot! I was taking over 10 mg daily for the first several months. I started out with really bad side effects but now it just makes it a little harder to sleep if i take it too late at night:)

Comment by Lacey Stephens on July 7, 2008 at 1:08pm

I take 2 in a half in the morming and 2 in a half at nite, I am almost 2yrs post transplant.

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