Liver Transplants

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Comment by rosa shields 1 day ago

Hi Everyone I do not know if I qualify in this group but I believe I do .I had a liver and kidney transplant on January 11 , 1994 at the Royal Victoria Hospital in Montreal Canada. It will be 15 years in Jan. I am still on Neoral they are afraid to change my drugs since I was the first to survive this operation double transplant and since things are going great no need to change drugs. I compete in the World and the Canadian Transplant games hope to hear from my new friends. Rosa

Comment by Robert DeLong on August 25, 2008 at 2:13pm

Hello to all from New Zealand. Looks like the group is starting to get bigger. I nhoope this note finds you all in good health and happy to be where you are. I know it is a stryggle sometimes but asa the old Murray Banks joke about the pessimistic and optomistic kids after liiking into their bedrooms commenteed, The pessimist say all beautiful new toys and said "awe their all plastic and the break easily. The're just mot like they use to be". The Mum trying to even them out put a sandbox of horse poop in the optomist's room. When she looked in there he was jumpimg up and down in it saying "oh boy! where theres shit there's a pony!
Somethies it feels that way but if your having troubles there is hope and things do get better.
I am 2 days since 6 months. Sometimes it seems a lifetime and then just yesterday. I live in a small town?? 35,000 including all they can scrape up in the hills. I'n not convinved the sheep and dogs are not included. What that means is I am somewhat of an enigma here, Nobody knows what to do with me. I think I could set up a lay practice to assist transplant aaaaaaaaaaaaaaaaaaaaaaaaaaaaaasurvivors but then again since I am the only one playing guitar on the street corner with a hat on the ground would be more lucrative.
I have a question that I was hoping someone might be able to answer or give a wee bit of insight into. I am on Sirolimus 3mg BD, Nadolol and an antiobiotic. Nothing major. I am experiencing considerable pain in my legs and joints especially when sedendary. I have a PIT tube into my bile duct that acts up and is being replaced for the third time in 2 days. I also have swelling in my legs and groin. I am a sight in town with my black lycra bicycle pants and black compression stockings on. I have an Aussie outback long raincoat and a singlet but my wife has sworn that if I do that's it!
Any ideas on the pain and the swelling? I knoe Sirolimus can cause swelling but I am more inclined t think it is a severence of the lymph routes upward around the surgical scar.
Well on htat cheerful note, I am going back to get my 1931 Ford Roadster and cruise the main street of Gisborne.
Hope you all have a good weekend,
Robert

Comment by John Mitas on August 23, 2008 at 8:48am

Hello everyone,
I had my liver transplant on November 14th 2001 in So Cal. I have since changed transplant centers in order to get the care I need, in order for me to get the care I feel I need. I am being followed at Scripps Green Hospital Organ and Cell Transplant center in La Jolla Calif. I am on 750 mg. of CellCept.

Comment by Anne S on August 22, 2008 at 4:22pm

Hi, I had a liver tx on November 4, 2001 for Primary Biliary Cirrhosis ( PBC) at Cedars-Sinai hospital in CA. Anne

Comment by Burnie Schultz on August 12, 2008 at 4:42pm

Liver transplant 2/1995 UCSFMC CA. On 3mg Prograf/FK506 5mg prednisone since 2/1997

Comment by Vito F. Losito on August 9, 2008 at 2:25pm

Hello everyone, I'm sort of a newby 10 1/2 months out, doin well, glad you are also...

Comment by Ryan on August 8, 2008 at 9:42am

Hey liver friends.. I had my transplant April 30,2008. Not to long ago but things are well. I had the transplant at the IHC Medical Center in Salt Lake City, Utah. Great set of docs, nurses, pharmacists and others over there. I had PSC and had just been listed in February and got real lucky b/c I didn't get really sick before it all went down and did not have to wait long. Best of luck to you all.

Comment by Annabelle on July 28, 2008 at 7:15pm

Hi! I had mine 4 years 8 months ago at UMDNJ in Newark, NJ.

Comment by Maggie Catherwood on July 16, 2008 at 2:40pm

Hi everyone! I had a liver transplant on February 28, 2007 at Georgetown University in DC. I was fortunate enough to be able to share my donated organ with a 7 month old girl...who will turn 2 on Saturday! I had Wilson's Disease... diagnosed way too late of course:) I have been only on Prograf since three months after the transplant! I currently take 2 mg in the morning and 3 mg in the evening, but labs are due soon so that may change!

Comment by Rebecca on July 10, 2008 at 8:18pm

Hello. I had my liver transplant 23 yrs ago at Presby in Pittsburgh, PA.

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